Huntingtons Disease Malta Association Launch
22nd October.
Join us to participate in our first launch event where we will be introducing our association and how we can work together to support HD patients and families in Malta. Venue: Imperial (Sliema) at 4-7pm.
The association was formed to offer support for people who have this condition, create a space for solidarity, knowledge, and awareness and to improve the lives of those with the condition and their families.
As an association we wish to:
- Raise the awareness about this rare disease on the Maltese Islands
- Create a community of support for all HD patients and families
- Lobby the government for measures to support HD patients
- Keep our members up to date on new developments in the HD international community
- Organize social support activities for members
- Encourage and work towards bringing HD specialists and professionals to be established in Malta, such as neurologists, psychologists, physiotherapists, nutritionists, careworkers and all relevant professionals that can support specialized care for HD patients.
- Aiming to create a specialized centre for HD patients.
Ways you can donate to support our NGO
Since we are a new NGO, we really need support to get up and running and funds to enable us to start working on supporting HD patients in Malta and their families. Below are ways you can make a donation to our NGO:
Send a blank SMS to:
50617311 for €2.33
50617928 for €4.66
50619274 for €11.65
Or Make a phone call to:
51002028 for €20
51802037 for €25
51902029 for €50
Bank Transfer:
BNF Bank
Account Name: Malta Huntington Disease Association
IBAN: MT87BNIF14502000000000685526101
Address: 35, Triq Alessio Xuereb, San Gwann
Huntington disease is a progressive brain disorder that causes uncontrolled movements, emotional problems, and loss of thinking ability (cognition). Adult-onset Huntington disease, the most common form of this disorder, usually appears in a person's thirties or forties. Early signs and symptoms can include irritability, depression, small involuntary movements, poor coordination, and trouble learning new information or making decisions. Many people with Huntington disease develop involuntary jerking or twitching movements known as chorea. As the disease progresses, these movements become more pronounced. Affected individuals may have trouble walking, speaking, and swallowing. People with this disorder also experience changes in personality and a decline in thinking and reasoning abilities. This disease is often hidden and associated with shame, so on Malta many of these patients feel alone and not supported as the disease is largely misunderstood by patients, family members and on Malta we lack the specialisation from professionals which leads to patients not getting the proper care.
